by Irving A
The New York Times recently published an article on the power of databases when it comes to searching for donors worldwide. The founder of the photography website Photojojo recently announced on Twitter that he has been diagnosed with acute leukemia and needs an urgent bone marrow donor. Over 14,000 friends and fans offered their support and money to seek donors. His post on Twitter sparked a web of blog posts reaching thousands over social media. Through blog posts thousands of potential marrow donors have registered to attend a “Brown Bones Benefit Party.” During the event nonprofit organizations will cover costs for lab tests and data maintenance. Similarly, other events will take place across the United States and around the world with the same purpose: find a bone marrow donor.
When potential donors are registered and screened their genetic markers are stored in a database for other organizations to refer to when seeking donors for other patients. Databases simplify the process for others to locate perfect matching genetic makeup. However, testing donors and maintaining a database is very expensive. There really isn’t a way to fund this until patients or insurance companies are billed for donations. Yet, the costs for maintaining the database are even higher and it is very difficult for nonprofit organizations to fund them alone. Although many countries are realizing that there is a high demand for a donor registration database, there is no clarity on how to achieve it or fund it.
Timmons, H. (2011, October 30). Wanted: brown bones. Retrieved from http://india.blogs.nytimes.com/2011/10/13/wanted-brown-bones/?scp=10&sq=database&st=cse